Where's my friggin' drugs!!!!

Hello, fucked-up bone marrow fans!
Another visit to RSCH yesterday, to see doc and have a dose of Zometa (a bone strengthener, for those of you not in the know). Didn't see usual consultant, just a registrar, but he's a nice fella - seen him before and he seems to be up to speed with everything. They're def leaving me on all the drugs, except Velcade and I'm back for review in 4 weeks. That means more Dex, which explains why I'm blogging at 4am, having just snarfed down a couple of choccy biccies and watched an unusually not-shit Jennifer "Queen of the Mediocre Rom Coms" Aniston film. I really should use my time more effectively - maybe I could write that novel, or learn Spanish or something...

Usual (and more than usual) fuck-ups with pharmacy and prescriptions. I had a feeling I would be left waiting for meds and I wasn't wrong. I got there about 1.35 for a 2.00 appointment and finally got my meds about 4.30. Boring! No point in getting all pissed off or angry, but I can't help thinking that there's lots of other things I could be doing with my (arguably limited!) time. Anyhoo, I stayed chilled - just one of those things! Got rather more fucked off when I checked them through later in the evening, tho, and found one of them missing. I let one of the nurses check them - should have known better! So I've got to sort that one out in the morning - fuck sake! If I'm not in the bastard hospital or queueing for the car park, I'm on the bleeding phone to them! Bollocks!

On the neuropathy front, I knocked the amytripteline on the head, cos I felt well spaced out the next day - fine if you want to spend the day watching shit telly and gazing out of the window, but not too good if you want to go to work or drive the car. The doc gave me a lower dose to try, but I think I'll wait til the weekend, just in case. The terrible cramps I had in my legs seem to have settled down quite a bit anyway. My hands are a bit achy, but nothing too bad. I can't play the piano, but those of you who know me know that's no change then! Ha ha! The old ones are the best ones! My feet are still quite troublesome and sore. They're worse at night - don't know if that's because you just notice it more then, or if it's because they actually feel better when I'm wearing shoes/socks. Might find my tightest socks and try wearing them in bed tomorrow night to see if that helps (sexy!) - I draw the line at shoes in bed!

Went on Saturday to the Myeloma UK Infoday in London on Saturday with Pam (my SCB) and met up with lots of the bods fron the Under50s website. Really good to meet lots of fellow unfortunate bastards. We had a few drinkies together and I really hope we can all (and more of us,too) meet up again, maybe just for the drinkies bit!

So, I think that's all there is to know for now. Will post again soon - half term next week (hurrah!) so hope all you out there with kids have a good one. It'll be time to start getting excited about Christmas after that!

Juicy love and sloppy snogs,
Amanda xxx