Monday, 15 March 2010

Still up Shit Creek - but not in the same way...

Hello everybody!
Soz it's taken so long for me to blog again, but there's been some furious bathroom action, chez Skelton - as you will see...
Saw Gareth Morgan (the Grand Fromage in MM, for those lucky enough not to be in the know!) last Thursday. The long and short of it is that the doc I saw the previous week, who scared seven shades of shite out of me, was, shall we say, jumping the gun somewhat. The prof said it's really too early to make any judgements and the next BMB in about 5 weeks (12 weeks post-transplant) will be a much better guide to what needs to be done next, re further treatments. That said, he might decide to put me on Thalidomide for the time being. I'm seeing him again in about 3 weeks, so we'll see...
What's been concerning me for over a week has been a raging stomach upset. I've felt terrible - even had to miss the O2 concert, which upset me hugely. I also had a clinic appt at the Marsden last Tues and I told the doc that I'd had the chronic trots and awful stomach cramps. She said they'd need a sample (nice!) and I assured her that I'd be able to rustle something up, no probs! The doc called me that evening to say I'd tested positive for C. Diff - the bug that finishes off all the old dears in hospital. I've been given a 10-day course of antibiotics, which I've been taking since last Weds and I can't say it's a whole lot better. Still crapping through the eye of a needle and still, at times, in more pain than I've ever felt before in my entire life. Well, except for childbirth! I've done a little bit of research and apparently it can be resistant to the drug I'm taking, so if it's no better by tomorrow, I'm gonna give the hospital a call to see what they say. I can cope with the pain in the daytime, but at night it's awful. Don't think I've slept for longer that 30mins in any given "burst" for over a week. It's not so much sleeping as passing out with exhaustion. The problem is that much of the pain is in my side, which spreads around to my back and chest, at times in a heart-attack-stylee which is deeply unpleasant and makes it near impossible to lie down. Am well pissed off with it now - would have cheerfully put a bullet through what passes for my brain last night. Luckily, I don't have a gun. I expect the hospital will just want me to finish the course of antibiotics, but I hope they can give me advice on pain relief, or let me know where I can lay my hands on that gun...
Anyhoo, I feel the over-used bathroom singing it's siren song, so best all round if I close now.
I'll post again as soon as there's anything worth telling.
Love,
Axxx

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